Hairy Cell Leukemia Patient Data Registry
This is not medical advice. AI-assisted translation — inaccuracies may occur. Always verify the original and consult your oncologist before taking any steps.
About the trial
The overall objective is to develop a clinical data registry that can be used to facilitate research with the ultimate goal of reducing the morbidity and/or mortality and improving the quality of life of patients diagnosed or living with hairy cell leukemia. With approximately 1,000 new cases of this rare disease identified in the US each year, HCL represents 2% of all cases of leukemia in adults. Considering the rarity of this chronic leukemia, the Hairy Cell Leukemia Foundation (HCLF), in partnership with investigators from its Centers of Excellence, seeks to develop a registry to help researchers identify new trends in outcomes, recognize the most effective treatments, discover previously unknown complications of the disease, and design clinical trials for new therapies.
Original English text from ClinicalTrials.gov
Who can (and can't) join
✓ Qualifies
- •Osoby z klasyczną postacią białaczki włochatokomórkowej.
- •Osoby z odmianą białaczki włochatokomórkowej.
✗ Disqualifies
- •Dzieci nie mogą brać udziału w badaniu.
Simplified criteria — AI translation
Trial details
- Minimum age
- 18 Years
- Last updated (source)
- July 2, 2026
- Sex
- No restrictions
Locations (8)
University of Miami/Soffer Clinical Research Center
Miami, United States
Mount Sinai Medical Center of Florida
Miami Beach, United States
Mayo Clinic
Rochester, United States
University of Rochester /Wilmot Cancer Institute
Rochester, United States
Ohio State University Comprehensive Cancer Center
Columbus, United States
Peter MacCallum Cancer Center
Melbourne, Australia
BC Cancer, Part of the Provincial Health Services Authority
Vancouver, Canada
Cancer Care Manitoba
Winnipeg, Canada
Trial contact
Hairy Cell Leukemia Research Data Registry
Elena Botoulas, BS
Contact information from ClinicalTrials.gov. Contact in English.
Share this trial
Data from ClinicalTrials.gov. AI-assisted translation, last sync: 7/3/2026.
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