Multicenter HomeVENT: Home Values and Experiences Navigation Track
This is not medical advice. AI-assisted translation — inaccuracies may occur. Always verify the original and consult your oncologist before taking any steps.
About the trial
This is a multicenter study to test a decision-making support process for families and clinicians facing decisions about chronic home ventilation for a child. The investigators hypothesize that the intervention will increase family preparedness for decision-making and will improve clinician-family shared-decision making. Half of families will be assigned to "usual care" arm and half to the "intervention" arm. Intervention families will view the study website with study staff and will answer questions related to website content. All families will be interviewed and surveyed at 1, 6 and 12 months after enrollment. Each family will designate 1-2 physician involved in the decision about home ventilation; each physician will be interviewed and surveyed at 1 month.
Original English text from ClinicalTrials.gov
Who can (and can't) join
✓ Qualifies
- •Rodzic lub opiekun dziecka (powyżej 18 lat), które ma przed sobą decyzję o respiratorze domowym w ciągu 30 dni
- •Lekarz uczestniczący w decyzji dotyczącej respiratora domowego dla pacjenta ze studiów
- •Osoby mówiące po angielsku lub hiszpańsku
- •Chęć uczestnictwa w badaniu i dostępność na jego czas trwania
- •Dostęp do internetu lub telefonu, jeśli ktoś chce uczestniczyć w ten sposób
✗ Disqualifies
- •Dzieci (nie mogą być prawnymi decydentami)
- •Osoby nieznające angielskiego ani hiszpańskiego, gdyż strona internetowa i filmy dostępne są tylko w tych dwóch językach
Simplified criteria — AI translation
Trial details
- Minimum age
- 18 Years
- Last updated (source)
- July 16, 2026
- Sex
- No restrictions
Therapies / drugs in trial
Locations (4)
Johns Hopkins All Childrens Hospital
Tampa, United States
Children's Hospital New Orleans
New Orleans, United States
Johns Hopkins University School of Medicine
Baltimore, United States
Seattle Childrens Hospital
Seattle, United States
Trial contact
Renee D Boss, MD
Fiona Jardine, RN
Contact information from ClinicalTrials.gov. Contact in English.
Share this trial
Data from ClinicalTrials.gov. AI-assisted translation, last sync: 7/17/2026.
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